Brooke has already had heart surgery and uses a G-tube for feedings.
"She's 2 years old and she can't sit up. It's very difficult. Now she has night terrors and she's screaming. It's not good. I did get upset on the ice the other day for no reason at all," Boutiette said.
It was his wife Kristin who encouraged KC to go for his dream, even after Brooke was born.
"I'll actually sit on the bench and think about my whole life and I should be home with the kids but my wife told me if you're here or there it's the same ting so she had me keep pushing," Boutiette said.
The couple also have a 5-year-old son, Braam, and KC runs a company that makes custom cycling shoes.
"It's hard having a family, a company, all on my shoulders, it's really tough. It's been really difficult with my daughter the last few months, but family pulls together and we're trying to chase this dream," Boutiette said.
He'll be competing in the new mass start race at the Olympics.