ZEPHYRHILLS, Fla. - Last year, ABC ACTION NEWS shared the journey of little Selah Clanton, a then 8-year-old disabled girl who nearly drowned in a Rochester, New York.
Since then, she's had 24 hour a day nursing care.
But now her parents said the insurance company, Blue Cross Blue Shield is denying their claim and wants to put their child in a nursing home.
Desperate, the family reached out former local lawmaker, Mike Fasano. After a flurry of letters, they received a call from Speaker of the House Will Weatherford with some good news Monday.
The Speaker's office told ACTION NEWS, they called the insurance company for further explanation.
This news coming on a very important day for the family.
A stranger donated thousands of dollars toward hyper baric chamber treatments, a procedure not typically covered by insurance. Jon and Yvonne Clanton, invited only ACTION NEW to witness this huge therapeutic step for Selah, now 9-years-old.
But mixed with hope is a family's despair.
"We are hopeful that this will make a difference for her," said Yvonne Clanton.
"We need help," Yvonne pleaded.
The Clanton's said the care care that should be covered by a 24 hour nurse for Selah is now being denied through their carrier Blue Cross Blue Shield.
Jon, a state employee for more than 15 years, said he's never missed a premium insurance payment.
"It's sad you know. You pay for 15, 16 17 years and then
you need it and to not be provided is a real awkward situation," said Jon.
A spokesperson citing privacy would not comment on the Clanton's case to ABC Action News.
But, a rep did say it's the state's decision not the company's.
Former House representative and current Pasco County tax collector Mike Fasano agrees. He stepped in to help with the family's battle.
"Truly all it would it take in my opinion, is the Speaker of the House, Will Weatherford, to contact Blue Cross Blue Shield and get the ball rolling so this young girl can continue to have her services at home," said Fasano.
And it appears that's happened.
While ACTION NEWS was with the Clantons, they told us Weatherford's office called, asking them to file another review with the insurance company.
The Clantons have already been denied twice, but hope this third time will be in their favor.
They have five children, three disabled, including Selah,who was diagnosed with severe autism before the accident.
Now, she's in what doctors describe a persistent vegetative state.
"That is all we would like to see is Selah back," said Yvonne.
They said they can't happen without help. They also worry about their other kids.
"To have to shoulder that without nursing care would be overwhelming. We would think it would be detrimental to her health and in fact our care giver said it would be life threatening to Selah," said Jon.
If insurance does deny the claim, the Clanton's said a nursing home is not an option. They will rely on their faith and just pray for the best.
The Clantons have started a blog where you can follow Selah's progress you can head to:
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